Thursday, October 22, 2009

Proselytizing Happiness

We had our first dinner guest last night! It was great, the house is ALMOST orderly. We still need to have a housewarming party, but we need to install handles on our kitchen cabinets, and I still need to go to Ikea to exchange some lights so we can install them and bolt our bookshelves to the wall.

Cancer stuff is
not exciting. I am going to go to a Survivor Party this evening held by my breast surgeon. Tripple chemo whammy today with all three treatments that I am getting. And next week I am going to attend a presentation put on by the head of Oncology at Georgetown University Hospital.

From meeting a variety of women with breast cancer, it seems that there are two paths to dealing with the disease. You either try to get ALL in info you can, stay on top of treatments, new clinical trial results, know all the dosages for the medicines you receive, and attend colloquiums or conferences. Or, you don't delve deeply into anything, don't seek out second opinions, and are just anxious to lodge the experience firmly in the past. It is hard to tell which is better, the first makes me FEEL better, but cancer is personal, and everyone has to do what makes them emotionally able to cope.

This brings me to a lady called Barbara
Ehrenreich, and a book called, Bright Sided. She has been in the paper, NPR, and the Daily Show, so I feel that I have heard her arguments fairly thoroughly, and I have to disagree with most of them. She wrote, Nickle and Dimed, one of the best books I have ever read and ought to be REQUIRED READING IN HIGHSCHOOL, so I have so much respect for her.

She
be lives that not only does the forced, “smile or die” cheerfulness of the breast cancer culture infantilize women, she argues, it can do them harm, by making them feel guilty for “failing” to heal themselves by staying positive. She hates all this voodoo that just thinking something can make a physical impact in the world, and states (quite rightly), that there is no physical proof by quantum physics or any science to substantiate.

She was diagnosed with breast cancer, and it seems like she had a horrible experience with all the "stay positiveness" that is pushed by the greater breast cancer movement. Breast Cancer Support is one of the most highly organized movements, and they do push their pink fuzziness a lot. I think she got sick of people trying to cheer her up, so she wrote a book basically saying that positivity was a delusion akin to organized religion, and she didn't like being proselytized to.

Which I understand. For instance, I love talking to
Kenji, because I can make comments like, "if I die..." without worrying about hurting my family, or eliciting the typical over exaggerated response like,"OH NO! Don't say that! You are going to be fine! You have such a great attitude, you will overcome this." Very few people can hear me say, "If I die.." and take it with the same attitude as if I had said, "If it rains."

That being said, I do not want to begin every sentence or though with a stated or implied,"If I die." I don't want to die in the next five years, although statistically things aren't in my favor, I would prefer to operate as if I was in the minority statistic rather than the majority. So I make plans, talk about kids, bought a house, think about a dog, think about where the future might take my husband and I, etc. While I do appreciate doses of realism, I take small, infrequent doses.

She stated on the radio the other day that she took nothing from breast cancer, and hated all this BS about cancer teaching so much or opening up new doors, etc. She hated this imposition that she was supposed to take something from her experience with breast cancer. I say she is wrong.

She was bitter about getting diagnosed. We all were. But for instance, if my car breaks down and I need to change my tire, I am going to be pissed about it, but in a week I am going to be laughing about it and say, "Thank goodness for my
iphone, I sat in my car, watched a YouTube video on how to change a tire, and I changed to spare right on the street without any help!" It would be a opportunity, a learning experience.

For me, and again I reiterate the personal experience of cancer, I have reaped so much from the experience. I spent quality time with my family, I revamped my diet and the way I think about nutrition, I re-prioritized my life, I became closer to my friends, I have discovered an interest in biology and body chemistry. Never would have happened otherwise. If I had a choice, I wouldn't "do it all over again," but I am not going to deny that their was a MAJOR silver living.

The ONLY interesting thing that she brought to my attention was that she alleges that there is no connection between mood and the immune system. I don't know why I am under the impression that there is. I haven't seen empirical data. I feel that I have read it, but it could be just a myth that has been perpetuated, like oranges and Vitamin C, or poisoned Halloween home baked Halloween Cookie treats (yes, that NEVER happened, just an Urban Myth that has caused parents to toss hundreds of thousands of perfectly baked cookies out of Trick or Treat Bags for the last 3 decades). I will explore more and report! Would love to hear any feedback from anyone who has thoughts.

5 comments:

  1. Dana, I agree with all your words. Strong words, my friend. It is difficult to understand the "brighter" side of this horrible experience but you are seeing the good side.. For me, I was finally able to say "I am gland I had cancer" a few month after the treatment.. It is shame that we both had to grow up much faster than others but you are becoming and already are inspiration to many of us. Keep your heads up. We are both fighting the same battle. :)

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  2. I have never read this book, and have a love hate relationship with Barbara Ehrenreich. Not to compare my problems to yours, and of course 'what hasn't killed me has made me stronger' but I personally hate when people try to blow sunshine up my butt. Some things have no bright side and just suck - if we make a concious effort to work to heal ourselves and make choices to improve our lives as a result of whatever bad thing happens, that's more your own accomplishment than a "silver lining" or a "blessing in disguise".

    But too many people just naievely "have faith" without having realism and/or the drive to make the positive changes in their lives, and this is where yes, blind optimism is a bad thing.

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  3. Did a little bit of digging on PubMed and found several articles on relationship between the psychoemotional state and the immune system:

    I think this would be a good start:

    http://www.ncbi.nlm.nih.gov/pubmed/8728571

    and then there are quite a few others in the related section...

    I am curious whether the present position is that depression directly causes degradation of the immune system or if it causes something that, in turn, leads to degradation. For instance, depression -> lower level of physical activity -> lower activity of the immune system.

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  4. Wow this is deep...good question and point above on whether mood can directly or indirectly affect the immune system if it does in fact affect it at all.

    I realize that I don't have cancer, and I know that in some situations there is no amount of smiling and postiive thinking that seems to help at the time. However, I for one believe in how powerful positive thinking can be, and I think you know that too Dana. I know deep in my heart that it CAN and does affect the outcome for many...maybe it's not a guarantee...maybe it has an indirect effect rather than a direct biologically proven effect....maybe it seems like it is more trouble than it's worth sometimes when things still don't seem to be going our way....but I say it can't hurt. You have to believe it to achieve it! I am not Pollyanna by any means, and I also know that realism plays just as important part in getting on the right path, but I also believe in a higher power and that miracles happen all the time with no explanation whatsoever. I have heard too many stories of people who have pulled through cancer and attributed a great deal to the fact that they visualized themselves well and believed in their ability to overcome it.

    I love that you can see the silver lining and are embracing this as a learning experience that can actually enrich your life...because THAT is the type of thinking that will not only help you embrace your experience, but WILL also help you heal and recover from this stronger than you ever thought possible! I believe in you Dana, so don't you dare stop using the power of your mind to help yourself heal.

    Visualization and positive thinking DO undoubtedly make a difference for many people. And if it doesn't, you can die knowing that you didn't let it get the best of you and lived your best life possible no matter what... learning new things that you might never have learned, and understanding aspects of life you never did before. But then again...you already know this, because you are one of the smartest women I know:)

    You are amazing Dana! Keep believing in yourself no matter what! Pessimist literature be gone!;)

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  5. Hi Dana,
    I'm glad you blogged about this. As I've listened to the NPR segments with Barbara Ehrenreich, I've wondered what your thoughts might be. I think she has an interesting point of view, but I can hear her bitterness overtaking her thesis, which bothers me. It's as if THE reason she wrote the book is because she got really annoyed by the breast cancer support movement, then just to back up her opinion, she cites that there is no scientific evidence proving the connection between mental state and immune system.
    I appreciate the fact that you've been fighting and have been open and honest about the shittiness of the whole thing, and yet you've gathered some important lessons.
    I think you're amazing.
    Congrats on the house!

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